Other Factor Deficiencies
Hemophilia Herald Newsletter
CCHF provides financial support to families affected by a bleeding disorder during occasions of serious need in the form of grants and prepaid gas cards.
CCHF provides financial support to clients affected by a bleeding disorder who pursue higher education.
CCHF, along with her sister chapters in San Diego, Southern California, and the San Francisco Bay area support the efforts of the Hemophilia Council of California.
Since 1969 CCHF has been an active chapter of the National Hemophilia Foundation (NHF) .
MedicAlert Foundation is a nonprofit organization providing 24-hour emergency medical information and identification service. CCHF supports individuals who do not have the means to acquire this critical service. The program is administered by the HTC at UC Davis.
CCHF assists clients in fulfilling their greatest potential by facilitating the development of skills and/or enhancing knowledge in body, mind, and spirit.
Life Long Learning Program
2011 CALIFORNIA COASTAL RACE FOR HEMOPHILIA
San Francisco to San Diego, 7 days, 500miles. Tour of California you ask? Nope, how about the 10th annual HCC Costal Ride for Hemophilia?
2011 marked two new additions to CCHF’s annual costal ride team, Burt Lo (rider) and Sean Hubbert (SAG Support). Burt is a new recruit to the world of endurance cycling. A dedicated board member and dutiful dad, Burt undertook the mammoth task of riding 500 miles over 7 days with a whopping 45 days - or so - of training. Burt started out on a foggy, cold, and wet day in San Francisco with his faithful companion Bruiser (a friendly stuffed animal his kids gave him for the journey) to keep him company for the long run down the coast. Now, before I boast any further about my teammate Burt, I would be remiss if I did not mention the help all of us riders get along the way. There are mechanics and SAG support, amongst many others who help so much during the week. It is just not possible to ride the distance and terrain we do without their support. That is precisely were our second CCHF all-star showed her true colors, Sean Hubbert. Whether it was a cold drink on the route, the kind wave to steer us in the right direction, a warm Cup-o-Joe at the finish, or the nonstop laundry she did for all of us (even non CCHF persons I must say), Sean was like having a second mother on the trip. She always made us feel safe, well fed, and made the week pass without even so much as a hiccup….just the way she always does….very well done!
Now you may think Burt spent time as a postal carrier for the USPS, because neither wind, nor rain, nor sleet or snow could keep Burt off the bike. He started off by gliding down the steep grades of San Francisco only to follow rolling up a 19% grade into Admiral Park in Monterey. He traversed the ups and downs of Big Sur to Ragged Point for 52 miles, climbing 5,500 vertical feet (and that was just the lunch spot). He did his first 100 miles or century in a day, a true bench marks in cycling endurance riding. Finally, Burt and Bruiser safely navigated Southern California traffic to lead the entire ride into Mission Bay Park in sunny San Diego. Man o Man, what a ride. Great work Burt, see you on the road in 2012.
There are many ways to support our community. Feel free to contact us if you have any questions or concerns.
To make a monetary donation, mail a check to CCHF or initiate payment thru PayPal.
Volunteers are needed to approach businesses and associates to solicit donations for our Crab Feed raffles.
Volunteer opportunites include:
- Write articles for the newsletter
Fundraiser Services or Items
Volunteer Your Time and Skills
CCHF maintains a small stock of non-perishable, nutricious foods to help families get by.
Become a member of CCHF by completing an application and submitting your annual dues.
Please join us with your ideas at our monthly board meetings. Scheduled for the first Tuesday of each month at the Kiwanis Family House on 2875 50th Street near the UCD Medical Center.
The Fundraising Committee meets from 5:00 - 6:00 pm and the general meeting follows.