ADVANCE REGISTRATION DEADLINE
MIDNIGHT, AUGUST 7TH
9:00 AM – Log-in/Meeting Room Open
9:30 AM -- Welcome/Opening
9:40 AM -- Sponsor Presentation – Genentech
9:45 AM – Keynote – Moderated Panel Discussion: “Careers in the New Normal”
How has thinking shifted among major employers about how to get work done in the future and how should young people plan for that future? Three top workforce officers will gaze into their crystal balls and share what they see.
Cynthia Burks, Senior VP-Human Resources, Genentech
Kate Scanlon, Head of HR-Hemophilia Division, Takeda
10:45 AM -- Sponsor Presentation – Sanofi-Genzyme
10:50 AM -- Break
11:05 AM – Morning Breakout Sessions:
“Becoming Independent On My Own,” NHF
Leaving for college or entering the workforce after high school are both exciting and challenging. By the end of this session, participants will be able to consider financial planning, share tips and support on how to disclose their bleeding disorder and create a plan for treatment, adherence and emergencies.
“Careers That Don’t Require Degrees,” Terri Carpenter and Julie Davis-Jaffe, Sacramento Employment & Training Agency
Not all careers require college degrees. Learn about them and how to find them.
“Life After High School: Your Bleeding Disorder in Young Adulthood,” Sharilyn Perea, Senior Clinical Specialist, Takeda
Making informed choices, choosing a college, living independently, real-life conversations and resources to help you have them, school preparation, travel considerations—lots to think about. This session will help.
“Back to School: Educating Educators – Tips for Developing a Back-to-School Plan,” Shonda Joshua, Patient Advocate/Caregiver, CSL Behring
As a mother of a child with hemophilia, it is not easy to hand over their care and safety to someone else. But once children reach school age, letting go becomes inevitable. When her son Michael went off to school, Shonda learned to advocate for him and taught him to advocate for himself. Shonda shares strategies for how parents can help their children with hemophilia thrive at school.
“Challenge Accepted, Part 1,” John Smith, Hemophilia Clinical Education Manager, Genentech
A special viewing of an episode of the comedy/reality series inspired by and made for the hemophilia community. Mark Skinner, former president of the World Federation of Hemophilia (WFH) and member of the National Hemophilia Foundation, offers advice and life lessons to young people thinking ahead about their future with a bleeding disorder. Attendees will also be able to connect with other families during the post-video discussion.
11:50 AM -- Lunch Break
12:20 PM -- Sponsor Presentation - Pfizer
12:25 PM -- Afternoon Plenary Session:
“Back to School??” Gayle Garbolino-Mojica, Placer County Superintendent of Schools
What can you expect when kids return to school? What is it going to be like for them now? What are schools doing to safeguard students? Will it really be safe? What can parents and students do to prepare for the return to school? What will they need to do to partner with teachers and administrators to assure a good, safe education for their kids?
1:10 PM -- Silver Sponsor Presentation - Takeda
1:15 PM -- Break
1:30 PM -- Afternoon Breakout Sessions:
“Setting Educational Expectations,” Leslie Ferber, Sanofi Genzyme
Explore the world of education for a child with a bleeding disorder, including the impact of setting expectations at home and having a proactive relationship with your child’s school. Recognizing that we may experience guilt, social obstacles, and absenteeism, we’ll discuss ways to help establish clear goals, positive routines, individualized health care plans, and a cycle of responsibility and self-advocacy.
“Road to Independence: Teens and Young Adults with Hemophilia,” Eva Felix, Pfizer
Practical tips and resources presented to help teens and young adults with hemophilia find better balance in life. Emphasis is placed on independence, peer pressure and other considerations specific to teens and young adults.
Resume Writing Workshop, Jessica Gomez, Sacramento Employment & Training Agency
Resume writing is an art. Get tips from an expert.
"Challenge Accepted, Part 2,” John Smith, Hemophilia Clinical Education Manager, Genentech
A special viewing of an episode the comedy/reality series inspired by and made for the hemophilia community. In this episode, Dr. Oz gives guidance on how young people with a bleeding disorder can start to plan for their career goals. Attendees will also be able to connect with other families during the post-video discussion of the unique challenges of living with hemophilia.
2:15 PM -- Sponsor Presentation-CSL
2:20 PM -- Conference Wrap-Up/Sponsor Recognition
2:30 PM -- Main Room Open for Informal Socializing
3:00 PM -- Zoom Meeting Closes